Resources for Adult Caregivers

Download the brochure Resources for Adult Caregivers (PDF) supporting the caregivers of dementia and Alzheimer's patients.

Local Resources

Aging & Disability Resource Center of Dane County (ADRC)
daneadrc.org
Information about resources and support on all aspects of life related to aging or living with a disability.
Dementia Care Specialist at ADRC
Ellen Taylor
(608) 240-7400
Taylor.Ellen [at] countyofdane.com (Taylor[dot]Ellen[at]countyofdane[dot]com)

Oregon Area Senior Center
oregonareaseniorcenterwisconsin.com
Provides support, services, and opportunities for older adults to remain as independent as possible. Free case management services. Adult Day Program three mornings each week.
Call (608) 835-5801 for more information.

Oregon Public Library Memory Kits
oregonpubliclibrary.org/collections/eureka/memory 
Provides support, services, and opportunities for older adults to remain as independent as possible. Free case management services. Adult Day Program three mornings each week.
Call (608) 835-5801 for more information.

UW Madison Research Center 
adrc.wisc.edu
Community friendly info and a podcast highlighting local information.

Online Resources

Alzheimer’s Association
alz.org
Leading Alzheimer’s care, support, and research.

ALZ Connected
alzconnected.org
Free, online community for everyone affected by Alzheimer’s or another dementia.

Alzheimers.gov
alzheimers.gov
The federal government portal to information on Alzheimer’s disease and related dementias care, research, and support.

BadgerLink
badgerlink.dpi.wi.gov
Online resources for Wisconsin residents including reliable health information.

Diverse Elders
diverseelders.org/about-us
This website works on connecting marginalized elderly folk and their caregivers with resources.

Forge 
forge-forward.org/resources/aging
Forge is a website for trans and non-binary resources. This webpage specifically provides resources on affirming care for elderly Transgender folk and support for their caregivers.

Mental Health Support

Caregiving sometimes requires a little extra support. Included are resources to support the mental health of both the caregiver and elder receiving care.

Psychology Today
psychologytoday.com/us
This directory provides specific subject fields ex: “aging” and “caregiving” where one can find specific mental healthcare support for their individual needs.

Inclusive Therapists
inclusivetherapists.com
Website to connect individuals to inclusive therapists, specifically centered on providing mental health care for marginalized communities. This resource also has a specialties menu where one can find specific mental healthcare support for their individual needs.

Books for Caregivers

My Two Elaines by Martin J. Schreiber
362.19 SCH
Memoir of Marty Schreiber, former governor of Wisconsin and the journey of providing care for his wife.
When Your Parent Becomes Your Child by Ken Abraham
362.196 ABR (book)
CD 362.196 ABR (audiobook)
As he chronicles his own mother's degenerative condition, Ken Abraham educates while offering inspiration to help readers cope.
The 36-Hour Day: A Family Guide to Caring for People Who Have Alzheimer Disease, Other Dementias, and Memory loss by Nancy L. Mace
362.1968 MAC
Mace and Robins provide practical and specific advice to make care easier.

Eldercare 101 by Mary Jo Saavedra
362.63 SAA
A guide for families in need of help as they care for their aging loved ones. 

Creative Care: A Revolutionary Approach to Dementia and Elder Care by Anne Davis Basting
616.8 BAS
Applying creativity to treating and interacting with those suffering from dementia.
Dementia Home Care: How to Prepare Before, During, and After by Tracy Cram Perkins
616.8 PER
Examination of the role of care giver for Alzheimer's/Dementia patients that offers help with making informed decisions.
The Caregiver's Guide to Stroke Recovery: Practical Advice for Caring for You and Your Loved One by Lucille Jorgensen
616.81 JOR
includes support about topics such as medications and treatments, financial and legal decisions, and work-life balance.
Keeping Love Alive as Memories Fade: The 5 Love Languages' and the Alzheimer's Journey by Gary D. Chapman
616.831 CHA
An overview of the love languages and Alzheimer's disease to correlate the love languages with the developments of the stages of AD.
I Am My Mother's Mother by Kelly Maloney
921 MALONEY
A personal journey of a daughter and her mother from local author Kelly Maloney.

Dementia & Alzheimer's 

Dementia Essentials by Jan Hall
616.8 HAL
A guide to help you and the person affected navigate the complexities of dementia and Alzheimer's
Dementia Reimagined by Tia Powell
616.8 POW
The cultural and medical history of dementia and Alzheimer's disease by a leading psychiatrist and bioethicist.
Creative Engagement: Activities for People with Dementia by Rachael Wonderlin
616.83 WON
Each activity chapter begins with an overview of how to introduce and implement a specific activity and sections devoted to engagement.
When Someone You Know is Living in a Dementia Care Community: Words to Say and Things to Do by Rachael Wonderlin
616.83 WON
Wonderlin explains the different kinds of dementia and details the wide range of care communities available for people.
Mayo Clinic on Alzheimer’s Disease and Other Dementias by Johnathan Graff
616.831 GRA
Comprehensive look at the typical symptoms associated with dementia, current findings regarding common causes of the disease, and gives tips.
The Problem of Alzheimer's: How Science, Culture, and Politics Turned a Rare Disease into a Crisis and What We Can Do About It by Jason Karlawish
616.831 KAR
Traces Alzheimer's disease from its discovery and tells the story of the biomedical breakthroughs that may allow it to finally be prevented and treated by medicine. 
Dementia: the Journey Ahead by Susan Scarff    
616.831 SCA
Practical advice and emotional support from the patient's diagnosis through final departure.